Share Your Story of How Medicaid
Increased Your Independence

The Medicaid Reference Desk is an online resource that explains Medicaid in basic terms, state by state. It gives people with cognitive disabilities, family members, and advocates information about what is available through their State Medicaid Plans and waivers. People can see and hear the information rather than just read it. The site also gives information on where to apply for services.

The Medicaid Reference Desk is looking for stories from people with cognitive disabilities and family members about how they have used Medicaid to increase their independence. They will collect written and recorded stories for use on http://www.thedesk.info the only web site that explains Medicaid for people with cognitive disabilities. So far, there are about 3,000 recordings on the site.

If they use your story, you will receive a free T-Shirt and $50.

If you have a story, send an email message to stories@thedesk.info or call toll free at 1-877-431-8532. If you know someone else who has a story, forward this information to them or tell them about it. They are especially interested in stories from Hispanic families, for presentation in Spanish.

All 50 States are now recognized on the Medicaid Reference Desk website.

A brochure for people with cognitive disabilities and families is now available and can be ordered in quantities by sending an email to brochures@thedesk.info.

The Medicaid Reference Desk is funded by the Centers for Medicare and Medicaid Services (CMS), the Administration on Developmental Disabilities (ADD) as a Project of National Significance and the NEC Foundation of America. Members of the project team are: Steve Eidelman (The Arc of the United States), Nancy Ward (Oklahoma People First), Laurie Powers and Diann Drummond (Portland State University), Lukki Indrasutanta and Elbert Johns (TheArcLink Incorporated).